LivingWithLGS was created to provide support and resources for parents and caregivers of children with LGS. LGS can impact daily life in a number of ways, including family relationships, school and home life. The Web site connects parents and caregivers of children with LGS to the resources they need to help them manage their child's condition while maintaining their family's quality of life. Caregivers can also learn more about the syndrome overall, including multiple seizure types and behavioral issues associated with LGS. A range of treatment options are also covered including seizure medications, diet therapy and surgery.

Navigating the Storm

At the cornerstone of the program is a video series, "Navigating the Storm." The three-part series was produced for the parents or caregivers of a child who has recently been diagnosed with LGS. The videos provide advice to help caregivers seek appropriate care and learn to cope with LGS.

The first video of the series, featuring Dr. Tracy Glauser, includes general information about LGS, questions for caregivers to ask their healthcare provider, and practical lifestyle tips for families dealing with LGS. The video is approximately three minutes long by design, in light of the already time-pressed LGS caregiver who needs to receive information as quickly and efficiently as possible. In addition to LivingWithLGS, the videos will be available in the online domains, on sites such as YouTube, allowing caregivers to access the content through their own Web searches. The second and third videos in the series, which will cover topics such as sleep hygiene and stress reduction techniques, will be available in early 2010.

"Parents want information about LGS and options for treatment, and are eager for help in addressing behavioral issues, as we learned through our survey," said Eric Hargis, president and CEO of the Epilepsy Foundation. "LivingWithLGS is a great new online resource for these busy parents."

SOURCE: Eisai Inc.